I am seriously ill with a number of things wrong with me that could kill me at anytime but I don`t look ill in fact at times I look quite well even when I am feeling awful which is basically most of the time.
It often drives me mad when people give advice about what you should be doing which usually involves lots of energy you haven`t got when they know you don`t feel well and the slightest excertion makes you exhausted.I even had someone tell me I should take up weight training! I have enough trouble carrying my own weight about let alone any extra!
Doctors are often the same. You can tell them how bad you have been feeling and all the different distressing symptoms you have been getting and you get no where as they just don`t seem to be listening.I told one doctor I was having chest pain and the next minute he was suggesting that I go on the exercise bike so they could see how far I could walk before I basically collapsed!!
So my plea to anyone who comes into contact with someone who has a serious illness please listen to them and try to understand how they feel and what they are going through.
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