Tuesday, 26 October 2010
Raising Funds!
Please support this great guy who is trying to raise funds for the Pulmonary Hypertension Association!http://www.justgiving.com/Kevin-Pinches0
Monday, 25 October 2010
Pulmonary Hypertension.
Very good article about how people are often mis-diagnosed when they have PH.
Pulmonary Hypertension Association - Press Releases
Pulmonary Hypertension Association - Press Releases
Treat the Patient!
Image via WikipediaI have Pulmonary hypertension, empathysema and heart failure so am under a consultant specialist in heart and lungs Being under a specialist is a blessing of course but can at times be a problem.If you go to your specialist and tell them you have different symptoms there is always this presumption that the symptoms are problems caused by your heart and lung problems and this is not always necessarily so.There always seems to me to be a reluctance to think outside of the box and this ignores other possibilities.
I have problems with rapid heart beat. For nearly eighteen months I have had this and there has been a automatic assumption that this is caused by my heart and lung problems but now they believe that the problem could be caused by a thyroid problem not by my heart and lung problems.I have a problem with fluid retention and have been having to go to the toilet a lot during in the night. This was presumed to be a heart and lung problem but now they believe I may be diabetic and that may be causing it.
I would like to see specialist consultants treat the patient and not just the illness. Treat us as a person and be prepared to think outside the comfort box of there own specialism for the benefit of the patient.Health, as is life itself, is complicated and often the obvious is not the solution to a
This is Great News!
Image via Wikipedia Another great breakthrough in the fight against Pulmonary hypertension.http://machineslikeus.com/news/breakthrough-achieved-treatment-pulmonary-hypertension
Saturday, 23 October 2010
Annual Flu Injection!
Image via WikipediaEveryone who has a long term condition like Pulmonary hypertension, COPD etc should have the annual flu injection.For normal healthy people flu can be nasty and make you feel really unwell but for those with long term health problems it can be far more serious.It can put you in hospital or worse. It is wise to bear in mind that thousands die each year because of the flu and many of them are people with long term health problems.This year for the first time a vaccine for swine flu will be in the injection with two other flu virus`s. I have heard a lot of people say that they were considering not having the injection because of this because they were frightened of the fact that the injection contains swine flu.Don`t think twice about having it and there is nothing to be concerned about at all.The only reactions to the injection I have heard about is a slight sore arm for a couple of days and mild flu like symptoms for forty eight hours. Considering the risks you are taking not having it this is a small price to pay!
My advice as someone who has had the injection is get it now there is nothing to worry about!
Tuesday, 19 October 2010
Good News Story!
This is a great story about a very brave and talented man who as overcome the odds Pulmonary hypertension has thrown at him and is making his life a real success.http://www.businesscornwall.co.uk/news-categories/awards/joey-pouch-beats-the-odds-123
Empathysema and Traffic Pollution.
This is a link to a very interesting article that will probably be of interest to those with PH who also have empathysema which I know a number do. I think it shows the importance of us reducing car use as its clear that this is having an effect on some peoples health.We need to this to happen not for ourselves as for us it is too late but for those who come after us who deserve cleaner air to breath and not to have to live their lives with the risk of contracting something as dreadful as empathysema.http://www.nlm.nih.gov/medlineplus/news/fullstory_104423.html
Tuesday, 12 October 2010
Stem Cell Treatment and Pulmonary Hypertension.
This is a link to a story about Pulmonary hypertension and stem cell treatment.It shows that much progress is being made with this treatment. Patients are being helped by this treatment now and I am sure that in time many more will be when the treatment as been fully developed and is more wildly available It gives real hope to all of us suffering from PH..http://medical.presslib.com/alternative-medicine/1671234.htm
Waiting!
When you have Pulmonary hypertension or another long term condition you tend to have regular tests blood tests, CT scans, MRI`s etc etc. Most of these tests are noninvasive and are nothing to worry about the thing that gets to me is the waiting for the results.
Sometimes you have to wait three or four months before you get these results as you have to see your consultant for them and I think that is terribly unfair.The delay worries people who are ill and already have much to worry about unnecessarily I think. When you have had a test you should get those results within weeks not months. If consultants are not able to see you and tell you the results then their juniors should be able to give you the information. If not I see no reason why the results could not be sent to your GP for them to inform you of the results.
Its about time that doctors thought more thoroughly about how they treat patients and tried to reduce the stress to a minimum they have to go through.Stress does no one any good but it can do great damage to anyone suffering from a long term condition.
Sometimes you have to wait three or four months before you get these results as you have to see your consultant for them and I think that is terribly unfair.The delay worries people who are ill and already have much to worry about unnecessarily I think. When you have had a test you should get those results within weeks not months. If consultants are not able to see you and tell you the results then their juniors should be able to give you the information. If not I see no reason why the results could not be sent to your GP for them to inform you of the results.
Its about time that doctors thought more thoroughly about how they treat patients and tried to reduce the stress to a minimum they have to go through.Stress does no one any good but it can do great damage to anyone suffering from a long term condition.
Friday, 8 October 2010
A Good News Story!
Think this is a great story that gives real hope to everyone suffering from lung problems and shows the unbelievable progress of medical science.http://www.starnewsonline.com/article/20101007/ARTICLES/101009718/-1/news38?Title=Early-double-lung-transplant-patient-celebrates-20-years-of-breathing-free
Tuesday, 5 October 2010
Interesting Fact!
Every day, the average American takes 3,000 steps. Before treatment, the average pulmonary hypertension patient can get winded after just 3 steps. Breathe life into a good cause and spread the word about pulmonary hypertension! Spread the word:http://www.phassociation.org/AwarenessMonth2010
Respiratory Tonic Tea to Support the Lungs.
Haven`t tried this yet but it sounds as if its worth trying.
Respiratory Tonic Tea to Support the Lungs | Sara Pope Agelasto
Respiratory Tonic Tea to Support the Lungs | Sara Pope Agelasto
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